"Here I am in the middle of a perfectly good fairy tale, & THIS happens! Right now, I'm perfectly healthy & happy. Well, "healthy" is apparently a matter of perspective! I've been informed that I have this blood-borne cancer in my body that'll kill me in 6 months if I don't do something drastic immediately. HUH??? Therefore, there's no choice other than"drastic"! Even with immediate action, there is no cure - only an extension of my life.

Feel free to tag along as I, & my husband, & some amazing friends commit to this journey. I'll share as much as I can! Yes, the medical team will have to make me very sick in order to suppress the cancer, but they'll also try to build up my immune system at the same time. We're in Texas, & there's an old sayin' in this part of the world: "Hold my beer, I'm goin' in!" Yeah, THAT applies. We have no idea what to expect, & I don't drink beer; but we're GOIN' IN!"

- Gayle -



Monday, April 16, 2018

This is tough


This is tough. In an effort to remain open, I have to mention this past weekend. It'll be graphic. Please skip over this if I've crossed a line. If so, I'm sorry.
On Wednesday, I was able to get all of my bathroom samples into the local doctor for laboratory examination. I felt pretty good & we even met a friend for lunch. But, after Wednesday, my gastric system completely shut down. Here's a brand new nightmare!
This is not something you realize immediately. It takes a day or two to realize that you've seized up. By Friday evening, I was writhing in pain. I understand that this is not cancer directly causing the problem, but is the underlying infection which has yet to be addressed; but I experienced stabbing pains in my upper liver, throughout my torso, & into my back. "Misery" doesn't begin to cover it!
In an effort to "force the issue", I intentionally took 1/2 of a pill which I know causes diarrhea on an empty stomach... then another 1/2 an hour later... & another 1/2 in one more hour. Nothing. At 3:30 a.m., I sent Christian to Walmart for a laxative. I have absolutely no history here, so I was a bit fearful. Still, this was becoming dangerous! I took two at 4:00 a.m. & another two at 10:00 a.m., all while writhing in pain.
By Saturday afternoon, I had results - what a relief... but what an excruciating ordeal! In addition to "movement", I was also taking the anti-nausea pills in an effort to curb the throwing up. As expected, it was about six hours in hell as my body began to purge everything, but I got through it! As all of this was going on, I also had a bucket in the bathroom with me due to the dry heaves. Saturday was NOT a good day!
So, what about Sunday? Well, I realize that I have to eat, but I'm scared to pieces to do so. I've been having watermelon & saltine crackers - after that anti-nausea pill, of course, & so far - so good! I don't know how long I can continue with just eating melon & crackers, but I'm now afraid of food.
So, as I mentioned, my samples have been sent to the lab & I'm waiting on results to identify whatever this nightmare may be. They said to expect a week for answers. Once I get the results, I'll send them off to the hospital for an anti-biotic recommendation. I can only hope that SOMETHING is identified as the culprit & we can begin to correct it! After six weeks, I'm still in bed with no energy & no stamina.. with no end in sight! I can't go on like this!
Yeah, I GET it. If cancer doesn't get you, the "opportunistic infections" will wear you down.
It's very discouraging & depressing!

- Gayle -